The European Paediatric Network for Haemophilia Management ( PedNet Registry)
Status:
Recruiting
Trial end date:
0000-00-00
Target enrollment:
Participant gender:
Summary
Rationale:
Haemophilia is a rare disease; to improve knowledge international collaboration is needed.
Well-defined clinical data will be collected from complete cohorts in order to prevent
selection bias.
Objective:
To collect data on bleeding during neonatal period, endogenous (genetic) and exogenous
(treatment-related) determinants of inhibitor development and long term outcome.